JLS: Conceptualization, Investigation, Writing—original draft, Writing—review & editing. AFW: Conceptualization, Investigation, Writing—original draft, Writing—review & editing, Validation. Both authors read and approved the submitted version.
Conflicts of interest
Both authors declare that they have no conflicts of interest.
Ethical approval
Not applicable.
Consent to participate
Not applicable.
Consent to publication
Not applicable.
Availability of data and materials
The raw data supporting the conclusions of this manuscript will be made available by the authors, without undue reservation, to any qualified researcher.
Zimba O, Radchenko O, Strilchuk L. Social media for research, education and practice in rheumatology.Rheumatol Int. 2020;40:183–90. [DOI] [PubMed]
Seraphine JL. Rheumatologists’ descriptions of the impact of social media on care delivery [dissertation]. Arizona: Grand Canyon University; 2021.
Barreto JE, Whitehair CL. Social Media and Web Presence for Patients and Professionals: Evolving Trends and Implications for Practice.PMR. 2017;9:S98–105. [DOI] [PubMed]
Ali SS, Wincup C. #RheumTwitter - the Rise of Social Media in Rheumatology: Research, Collaboration, Education, and Engagement.Rheumatol Immunol Res. 2022;3:163–8. [DOI] [PubMed] [PMC]
Hausmann JS, Doss J, Cappelli L. Use of social media by rheumatology fellows in North America. In: Solomon DH, editor. 2015 ACR/ARHP Annual Meeting; 2015 Nov 6–11; San Francisco (CA), USA. Arthritis Rheumatol. 2015. pp. 1012.
Nikiphorou E, Studenic P, Ammitzbøll CG, Canavan M, Jani M, Ospelt C, et al.; EMEUNET. Social media use among young rheumatologists and basic scientists: results of an international survey by the Emerging EULAR Network (EMEUNET).Ann Rheum Dis. 2017;76:712–5. [DOI] [PubMed]
Katz M, Nandi N. Social Media and Medical Education in the Context of the COVID-19 Pandemic: Scoping Review.JMIR Med Educ. 2021;7:e25892. [DOI] [PubMed] [PMC]
Goel A, Gupta L. Social Media in the Times of COVID-19.J Clin Rheumatol. 2020;26:220–3. [DOI] [PubMed] [PMC]
Chen A, Cho H, Evans R, Zeng R. Editorial: Reimagining communication in a post-pandemic world: The intersection of information, media technology, and psychology.Front Psychol. 2023;14:1154044. [DOI] [PubMed] [PMC]
Carr CT, Hayes RA. Social media: Defining, developing, and divining.Atl J Commun. 2015;23:46–65. [DOI]
Kaplan AM, Haenlein M. Users of the world, unite! The challenges and opportunities of social media.Bus Horiz. 2010;53:59–68. [DOI]
Smailhodzic E, Hooijsma W, Boonstra A, Langley DJ. Social media use in healthcare: A systematic review of effects on patients and on their relationship with healthcare professionals.BMC Health Serv Res. 2016;16:442. [DOI] [PubMed] [PMC]
Collins C, Campos J, Isabelle A, Bhana S, Jayatilleke A, Sufka P. AB1385# rheumjc: 3 year analysis of a twitter based rheumatology journal club.In: Annual European Congress of Rheumatology, EULAR 2018; 2018 Jun 13–16. Amsterdam, Netherlands. Annals of the Rheumatic Diseases. 2018. pp. 1777. [DOI]
Bessler JB, Fazzone W, Sladicka N, Ruth A. Understanding US healthcare provider preferences for consumption of publication content: opportunities to leverage omnichannel approaches.Curr Med Res Opin. 2023;39:1271–7. [DOI] [PubMed]
Amon KL, Brunner M, Campbell AJ. The Reel Health Care Professionals of Instagram: A Systematic Review.Cyberpsychol Behav Soc Netw. 2024;27:172–86. [DOI] [PubMed]
Guerra F, Linz D, Garcia R, Kommata V, Kosiuk J, Chun J, et al. The use of social media for professional purposes by healthcare professionals: the #intEHRAct survey.Europace. 2022;24:691–6. [DOI] [PubMed]
Alvarillo D, Nikiphorou E. Social Media and Rheumatology Societies: Strategic Insights.Rheumatol Immunol Res. 2022;3:180–3. [DOI] [PubMed] [PMC]
Dua AB, Kilian A, Grainger R, Fantus SA, Wallace ZS, Buttgereit F, et al. Challenges, collaboration, and innovation in rheumatology education during the COVID-19 pandemic: leveraging new ways to teach.Clin Rheumatol. 2020;39:3535–41. [DOI] [PubMed] [PMC]
Coler-Reilly A, Graef ER, Kim AHJ, Liew JW, Putman MS, Sattui SE, et al. Social Media for Research Discourse, Dissemination, and Collaboration in Rheumatology.Rheumatol Immunol Res. 2022;3:169–79. [DOI] [PubMed] [PMC]
Krusche M, Burmester GR, Knitza J. Digital crowdsourcing: unleashing its power in rheumatology.Ann Rheum Dis. 2020;79:1139–40. [DOI] [PubMed] [PMC]
Colbert GB, Topf J, Jhaveri KD, Oates T, Rheault MN, Shah S, et al. The Social Media Revolution in Nephrology Education.Kidney Int Rep. 2018;3:519–29. [DOI] [PubMed] [PMC]
Venuturupalli RS, Sufka P, Bhana S. Digital Medicine in Rheumatology: Challenges and Opportunities.Rheum Dis Clin North Am. 2019;45:113–26. [DOI] [PubMed]
Chan TM, Stehman C, Gottlieb M, Thoma B. A Short History of Free Open Access Medical Education. The Past, Present, and Future.ATS Sch. 2020;1:87–100. [DOI] [PubMed] [PMC]
Venegas-Vera AV, Colbert GB, Lerma EV. Positive and negative impact of social media in the COVID-19 era.Rev Cardiovasc Med. 2020;21:561–4. [DOI] [PubMed]
Sirotich E, Dillingham S, Grainger R, Hausmann JS; COVID-19 Global Rheumatology Alliance Steering Committee. Capturing Patient-Reported Outcomes During the COVID-19 Pandemic: Development of the COVID-19 Global Rheumatology Alliance Patient Experience Survey.Arthritis Care Res (Hoboken). 2020;72:871–3. [DOI] [PubMed] [PMC]
Haldule S, Davalbhakta S, Agarwal V, Gupta L, Agarwal V. Post-publication promotion in rheumatology: a survey focusing on social media.Rheumatol Int. 2020;40:1865–72. [DOI] [PubMed] [PMC]
Millar BC, Lim M. The role of visual abstracts in the dissemination of medical research.Ulst Med J. 2022;91:67–78. [PubMed] [PMC]
Ibrahim AM, Lillemoe KD, Klingensmith ME, Dimick JB. Visual Abstracts to Disseminate Research on Social Media: A Prospective, Case-control Crossover Study.Ann Surg. 2017;266:e46–8. [DOI] [PubMed]
Hmamouchi I, Najm AA, Kibbi LE, Metawee M, Halabi H, Abdulateef N, et al. How to optimize recruitment strategies of patients with rheumatic and musculoskeletal diseases for online surveys: experience from an international study.Rheumatol Int. 2023;43:705–12. [DOI] [PubMed] [PMC]
Venkatesh V, Davis FD. A theoretical extension of the technology acceptance model: Four longitudinal field studies.Manag Sci. 2000;46:186–204.
Garcia Vivar ML, Plou EA, Rivera N, Galindez E, Cuande E, Inchaurbe AR, et al. AB1788-HPR asynchronous teleconsultation by WhatsApp chatbot in controlled axial spondyloarthritis patients under biological therapy: patients’ perspective.Ann Rheum Dis. 2023;82:2127. [DOI]
Venuturupalli S, Kumar A, Bunyan A, Davuluri N, Fortune N, Reuter K. Using Patient-Reported Health Data From Social Media to Identify Diverse Lupus Patients and Assess Their Symptom and Medication Expressions: A Feasibility Study.Arthritis Care Res (Hoboken). 2023;75:365–72. [DOI] [PubMed] [PMC]
Barahona-Correa JE, Rueda-Ortiz C, Muñoz O, García ÁA, Fernández-Ávila DG. YouTube® as a source of information for Spanish-speaking patients with rheumatoid arthritis.Reumatol Clin. 2023;19:571–8. [DOI] [PubMed]
Sasse M, Ohrndorf S, Palmowski A, Wagner AD, Burmester GR, Pankow A, et al. Digital health information on autoinflammatory diseases: a YouTube quality analysis.Rheumatol Int. 2023;43:163–71. [DOI] [PubMed] [PMC]
Flurie M, Converse M, Wassman ER, LaMoreaux B, Edwards NL, Flowers C, et al. Social Listening in Gout: Impact of Proactive vs. Reactive Management on Self-Reported Emotional States.Rheumatol Ther. 2024;11:301–11. [DOI] [PubMed] [PMC]
Patrick M, Venkatesh RD, Stukus DR. Social media and its impact on health care.Ann Allergy Asthma Immunol. 2022;128:139–45. [DOI] [PubMed]
Kwan YH, Phang JK, Woon TH, Liew JW, Dubreuil M, Proft F, et al. Social Media Use Among Members of the Assessment of Spondyloarthritis International Society: Results of a Web-Based Survey.J Med Internet Res. 2023;25:e39155. [DOI] [PubMed] [PMC]
Gabarron E, Oyeyemi SO, Wynn R. COVID-19-related misinformation on social media: a systematic review.Bull World Health Organ. 2021;99:455–63A. [DOI] [PubMed] [PMC]
Rodrigues F, Newell R, Babu GR, Chatterjee T, Sandhu NK, Gupta L. The social media infodemic of health-related misinformation and technical solutions.HPT. 2024;13:100846. [DOI]
Wang Y, McKee M, Torbica A, Stuckler D. Systematic Literature Review on the Spread of Health-related Misinformation on Social Media.Soc Sci Med. 2019;240:112552. [DOI] [PubMed] [PMC]
Narayanan A, Shmatikov V. De-anonymizing social networks. In: 2009 30th IEEE Symposium on Security and Privacy; 2009 May 17; Oakland, CA, USA. IEEE; 2009. pp. 173–87. [DOI]
Jeyaraman M, Ramasubramanian S, Kumar S, Jeyaraman N, Selvaraj P, Nallakumarasamy A, et al. Multifaceted Role of Social Media in Healthcare: Opportunities, Challenges, and the Need for Quality Control.Cureus. 2023;15:e39111. [DOI] [PubMed] [PMC]
Kilic Y, Chauhan D, Avery P, Horwood N, Nakov R, Disney B, et al. The public’s attitude towards doctors’ use of Twitter and perceived professionalism: an exploratory study.Clin Med (Lond). 2021;21:e475–9. [DOI] [PubMed] [PMC]
Chaudhri V, Oomen T, Pridmore J, Joon A. “CARE” in social media: perceptions of reputation in the healthcare sector.J Commun Manag. 2021;25:125–41. [DOI]
Keller EJ, Mlambo VC, Resnick SA, Vogelzang RL. #PauseBeforeYouPost: Ethical and Legal Issues Involving Medical Social Media.Semin Intervent Radiol. 2022;39:203–06. [DOI] [PubMed] [PMC]
Misra DP, Ravindran V. Rheumatology research in the post-COVID era-challenges and solutions.Rheumatology (Oxford). 2023;62:489–91. [DOI] [PubMed]
